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RESOURCES

MORE ABOUT MOYAMOYA

Moyamoya Disease is a progressive cerebrovascular

disorder caused by blocked arteries at the base of the brain. Moyamoya actually means a “puff of smoke” in Japanese, describing the look of the tangle of tiny vessels formed to compensate for the blockage.

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WOMEN WARRIORS

A Warrior is defined as "One who is engaged aggressively or energetically in an activity, or otherwise worthwhile cause.” Here are a few Women Warriors to highlight:

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Tara Macinnes

The Advocate

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Bethal Tan

The Nurse

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Parul Somani

The Storyteller

MOYAMOYA ON THE SILVER SCREEN

Did you know that Moyamoya has been in more than a handful of medical drama episodes and medical talk shows, as well as in a Netflix docu-series?

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Moyamoya was featured in a Grey's Anatomy episode, in which a woman experienced multiple ischemic attacks due to Moyamoya, which she did not know she had until she was examined by the doctors in this famous series.

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The Good Doctor Will Yun Lee opens up about his son’s Moyamoya Disease.

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A woman in Ohio was suffering stroke-like symptoms between 10 to 15 times a day, but one doctor claimed it was all in her head. After being diagnosed with a rare disease, Kate Sippel wants to make sure others pay attention to the signs and get the help they need. NBC’s Morgan Radford reports for TODAY.

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Simon Cowell and Cheryl Fernandez-Versini granted the wishes of a little girl called Zoë by inviting her backstage at The X Factor rehearsals on Friday. The youngster, who is cared for by Shooting Star Chase charity, enjoyed a personal backstage tour to meet the judges and contestants at Wembley's Fountain Studios.

Additional Shows and Episodes

 Featuring Moyamoya:

  • Discovery Health's "Mystery Diagnosis" (January 2006)

  • ABC Primetime's "Medical Mysteries" (January 2007)

  • "Royal Pains" (June 2014); The episode was titled "Smoke and Mirrors" from season 6, episode 1.

  • TLC's "Sex Sent Me to the ER" (June 2014)

  • "The Doctors" (October 2014, April 2017, November 2019)

  • "The X-Factor", UK. (December 2015)

  • "Explained" on Netflix (September 2018); The episode was titled "Music" from season 1, episode 20, and featured record producer+DJ, Tokimonsta.

Additional Information:

What To Do When a Person Has a Stroke:

  1. Call 911 immediately

  2. Note the time you first see symptoms

  3. Perform CPR if necessary

Local Acute Rehab Hospitals:

  • Stanford Stroke Center: 780 Welch Road, Suite 205, Palo Alto CA 94301: 1(650)723-4448

  • Kentfield Hospital: 1125 Sir Francis Drake Blvd., Kentfield, CA 94904: 1(415)456-9680

  • Santa Clara Valley Medical Center: 761 Bascom Ave., Willow Glen, CA 95128: 1(888)334-1000

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Outpatient Therapy Services:

  • Mills-Peninsula Health Services, San Mateo, CA: (650)696-4317

  • Santa Clara Valley Medical Center, San Jose, CA: (888)334-1000

  • Neuro Ifrah Center & Clinics, Foster City, CA: (650)286-9030

  • Stanford Neurologic Rehabilitation Program, Palo Alto, CA: (650)725-5106

  • UCSF Medical Center at Mission Bay Outpatient therapy services: https://www.ucsfmissionbayhospitals.org/outpatient

Stroke Toolkit:

  • Floss pick packs for ease of one handed flossing

  • Revlon One handed blowdryer

  • One-hand Solos for piano: Early Elementary Pieces for Right or Left Hand

  • Stress ball

  • Grabber

  • Gait belt

  • Puzzles for Stroke Patients: Rebuild Language, Math, and Logic Skills to Live a More Fulfilling Life Post-Stroke

  • Saebo Mirror Box for hand therapy

  • Electric stimulation unit

  • Homecraft Bathtub Transfer Bench

  • Etac Deluxe One-Handed Paring Board

  • Sure Hand Rocker Knife

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